Kim Cohee
Exec Dir, Patient Advocacy Tenaya Therapeutics
Kim Cohee, MS is the Executive Director of Patient Advocacy at Tenaya Therapeutics. She holds degrees in Genetics and Health & Medical Sciences, was board-certified as Genetic Counselor, and has 30 years of experience in rare disease drug development. Prior to joining Tenaya, Kim worked at Ultragenyx, BioMarin and UC San Francisco. She also served on the Boards of Directors for CalRare and Team Telomere and is an Adjunct Professor at the University of Cincinnati College of Pharmacy.
Seminars
Wednesday 15th July 2026
Pediatric Gene Therapy Access: Communicating with Families, Managing Expectations & Supporting Early Expanded Access Requests
2:30 pm
- Educating patients and families about the risks and benefits of gene therapy and the expanded access process
- Communicating transparently when programs are early and pediatric data is limited
- Working compliantly with patient advocacy groups, who are monitoring clinical trials and other potential pathways to treatment
- Managing sensitive conversations around eligibility, timelines, and uncertainty in lifelimiting pediatric conditions
